Hull and East Riding Children's Neurodiversity Service

Welcome to the Hull and East Riding Children’s Neurodiversity Service. This service is a true partnership where children’s services work together with the child/young person and their family to understand what support is needed and how to help.

We would like to let you know that we are currently receiving an increased number of referrals and have a back log on sending out letters which advise of the referral outcome. We are working on alternative ways of sharing this information with you. If you are expecting a letter and have not received one, please contact us either by telephone: 01482 692929 Option 2 or Email: hnf-tr.hullandeastridingneurodiversityservice@nhs.net.

Moving forward we would like to communicate with you via email / text message. If we do not already have your consent, please email hnf-tr.humberneuroadmin@nhs.net adding the word “Consent” to the subject line and providing your preferred form of communication.

Please also include the name and date of birth of the young person with a referral into the service, along with your email address and current mobile telephone number.

ADHD Medication Shortage

We want to inform you there is a shortage of ADHD medication. NHS England has advised us not to initiate new ADHD medications until the shortage has been resolved. We are committed to offering as much support as we can during this challenging time.

If you have visited your pharmacy and encountered difficulties obtaining your medication, please try other pharmacies in your area. If you continue to face challenges in accessing your medication or if you have any concerns, we encourage you to reach out to us or your GP. We can assist in reviewing your prescription and exploring alternative solutions to ensure your needs are met.

Please do not hesitate to contact us for assistance or further information.

Please read the attached document here for more information on the above.

The Service

The Children’s Neurodiversity service includes the following services:

The Front Door Team
Autism (ASD) & Attention Deficit Hyperactivity Disorder (ADHD) assessment
Children’s Community Team for Learning Disabilities (CTLD)
Children’s Sensory Service
Children’s SEND Sleep Support Service

We have received a number of queries about emails being sent to us that we have not received, if you do not get an automatic response then this means we will not have received your email. If no response has been received, then telephone 01482 692929 Option 2

The Front Door Offer

Following a period of review, it was decided in conjunction with stakeholders the NFD would move forward functioning as a Single Point of Contact for ASD / ADHD diagnostic assessments.

The Front Door is not accepting Requests for Support.

The Front Door Team works at the triage stage of referral to ensure the child or young person is supported to access the right pathway and support.

Following engagement with our stakeholders, partner provider services, and an ongoing evaluation of the service, the Children’s Neurodiversity Service, Front Door Team are now accepting referrals via the listed Professionals in a phased way.

The Front Door Team

The Front Door Team includes an Operational Manager, Clinical Lead, Advanced Practitioners who are specialists in neurodiversity, Assistant Practitioners and Administrators.

Who can refer?

Referrals for ASD and/or ADHD assessments will only be accepted from the following professionals:

SENCOs
Educational Psychologists
Paediatricians
Speech and Language Therapists
Portage
Health Visitors
Core CAMHS
Providers Neurodiversity Services including the Sensory Service

How to make a referral

To make a referral the above professionals; parents/carers, education or second setting information (should the young person be out of education) are to complete specific referral forms and screening checklists.

As part of our ongoing Transformation, we are reviewing the referral forms, therefore, to ensure you have the current version, we recommend Professionals contact the Front Door Team to request ASD and / or ADHD packs.

All areas need to be fully completed on current documentation with contextual information added in the boxes provided.

Supporting information is to be provided if available from any other services involved with the Child / Young Person to gain an all-round representation of need.

Parent Carer Pathway

Professional Pathway

Contact Details

You can contact the Neurodiversity Front Door Team by:

Tel: 01482 692929, select Option 2 and Option 2
Email: hnf-tr.herneurofrontdoor@nhs.net
In writing to: Hull & ERY Children’s Neurodiversity Service, 2062-2068, Hessle Road, Hessle, HU13 9NW

Digital Referral Form

We are currently working on a digital referral form for Autism and ADHD referrals.

There were 2 stakeholder events held on 21^st June which involved, Parents, Carers, SENCOs and other professionals to go through the new referral form to ensure that it was capturing the correct information and also easier to fill in

From these events it was clear that a number changes were needed and also training would be needed, this would take a large amount of time to implement.

Due to this going to take additional time we agreed as an interim measure to make our current form digital.

Please see the following workshop presentation on ASD ADHD here.

Children's Learning Disability Team

The Hull & East Riding Children’s Learning Disability Team is a specialist team of Learning Disability nurses with input from Clinical Psychology and Psychiatry.

We provide specialist assessment and interventions for children/young people in the following areas: -

Understanding and managing behaviours that challenge

Sexual Safety

Emotional Regulation

Sleep – in conjunction with KIDS

Alongside this the team offers: -

advice and consultation to children, families, carers and other professionals involved.

training for staff, carers, and families to support their understanding.

promotion of collaborative working between health professionals and other agencies, including voluntary organisations

What is a learning disability?

There are three core criteria for learning disability:

1. Significant impairment of intellectual functioning

This means difficulties understanding, learning and remembering new things and in generalising any learning to new situations. This generally refers to an IQ of 69 or less.

2. Significant impairment of adaptive or social functioning

This means difficulties with a number of social tasks, for example communication, self-care, awareness and health and safety. This means a young person may struggle to cope on a day-to-day basis with the demands of their environment.

3. Age of onset is before adulthood

Safeguarding children

The children's community team, learning disability is committed to working with the area child protection committee guidelines and the principles of the Children Act 1989.

How to access the service

We welcome referrals from professionals who have knowledge of the child / young person across Health, Social Care, Education and Voluntary Sector settings.

Confidentiality

Information will not be shared with other people or agencies without consent. However, there are exceptions to this, which will be explained fully at first meeting with families.

Additional support required?

Should you find it difficult to complete these forms there are services that can help, please contact us for details.

Our stakeholders and partner providers may be able to provide support with specific needs such as sleep support, sensory processing, and integration, understanding autism and ADHD and emotional dysregulation.

Professionals working with young people who they believe to be neurodivergent can make a request for a 30-minute consultation with an Advanced Practitioner to discuss the appropriateness of the referral and identify any area or need. These need to be requested on an appointment basis only.

Additional Support Services

For more than 50 years, KIDS has provided a wide range of services nationally for disabled children, young people, and their families. Their services cover three main areas: information, advice & family support; play and social; and learning and development. They can be contacted by calling 01482 467 540

Please see the link below for a video developed by KIDS which includes sleep hints, tips and guidance.

Sleep Hints, Tips & Guidance - YouTube

Please see service checker and initial contact form for KIDS below.

Hull and East Riding initial contact form and service checker

Matthews Hub is a local charity whose ethos is to provide a support service for autistic people without a learning disability aged 13 or over, living in Hull or East Riding who have, or are waiting for a diagnostic assessment.

They provide advice and support in relation to employment, education, housing, benefits, health and diagnosis. They can be contacted on 01482 221 028

Hull and East Riding Parent Carer Forums & Local Offer

The Parent Carer Forums are local voluntary organisations run by parents and carers of children and young people with Special Educational Needs and/or Disabilities (SEND). For more information about the Hull and East Riding Parent Carer Forums and how to get involved please click on the links below.

The Local Offer website provides a range of information and advice to children, young people up to the age of 25 with SEND and parents, carers, and professionals

CISS

Are you a Parent Carer?

Do you provide support to a child who is ill, disabled or has a mental health problem.

As a parent carer your role may be causing you additional practical, emotional or financial worries that you need support with.

The Carers Information & Support Service (CISS) are available for support if you are aged 18 years or over and support a loved one, family member or friend who could not otherwise manage without help and who lives within the Hull Local Authority city boundary or has a GP in Hull.

CISS offer a comprehensive Carer Assessment resulting in information on your entitlements and identifying community services available to you and person/s you care for.

CISS work in partnership with the Special Stars Foundation and on the First Wednesday of the month host a coffee morning for parent carers to enable them to come and have a chat and share advice and experiences with other parent carers.

To access the service, you can call on 01482 222220 or pop into the Calvert Centre, 110a Calvert Lane, Hull, HU4 6BH.

You can also email the team on chcp.carersinfo@nhs.net.

The link to the website is: https://www.chcpcic.org.uk/chcp-services/carers/pages/contact-us

National Autistic Society Hull and East Riding Services

Advice and guidance (autism.org.uk)

Empowering families facing autism, mental health and educational barriers in Hull and East Yorkshire

Aim Higher - Aim Higher Official Website - Aim Higher Charity Website (weebly.com)

ADHD Support and Guidance

Attention deficit hyperactivity disorder (ADHD) - Living with - NHS (www.nhs.uk)

Contact Point

If you believe the young person, you know is mentally unwell and seeking specific support for anxiety; low mood, and or possible other mental ill health concerns a referral can be made on-line by an involved professional, parents/carers can call the service to make a referral and self-referrals can be made by young people aged 16-18 years by calling Contact Point on 01482 303688, Monday to Friday: 9am-5pm (excluding bank holidays).

CAMHS Crisis Team

Should your young person be in crisis linked to mental health distress, our CAMHS Crisis Team (Child Adolescent Mental Health Service) supports young people residing in Hull or the East Riding and operates 24 hours a day, 7 days a week by calling 01482 259400.

Please see below a range of information about other services that could help and support you, the latest version of our Frequently Asked Questions about the service and the service improvement plan from our Stakeholder Service Review Session (May 2022) ‘We said, We did, We will’.