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 Humber Staff involved in study which shows that computer therapy can help people with aphasia find lost words

Computer therapy can help people with aphasia learn new words even years after a stroke, a study funded by the National Institute for Health Research has found.

The pioneering £1.5 million study offered people with aphasia the opportunity to take part in self-managed speech and language therapy using a computer at home. More than 270 people from 21 NHS Speech and Language departments across the UK took part in the trial.

Results of the five-year study showed computer therapy enabled patients to increase their speech and language practice. Participants also significantly improved their ability to say the words they chose to practise.

Researchers are now hoping to focus on how to encourage the use of new words in everyday communication to further improve quality of life.

For more information and to view a video about the study please visit https://www.nihr.ac.uk/news/computer-therapy-can-help-people-with-aphasia-find-lost-words/8808

Annual Research Conference a “fantastic event”

Prof Alistair Burns, NHS England National Clinical Director for Dementia & Mental Health in Older People, praised the Trust for staging our second sell-out annual research conference, describing it as a “fantastic event”. The conference was attended by around 140 people from all kinds of professions and organisations. Wendy Mitchell, our Patient Research Ambassador spoke about the importance of being involved in research and read an extract from her Sunday Times No1 best selling book ‘Somebody I used to know’. There were a huge variety of presentations through the day, from person-centred care in general practice, to leg and foot ulcers, mental health in expectant and new mums, physical health inequalities of those with poor mental health, clinical trials, treating phobias in children, carer involvement in risk assessments and finally a presentation on alcohol addiction.

One of the sessions included our video which celebrates research and the impact it can have on people's lives. You can watch this at https://youtu.be/LBgULBKRiAE 

Dr Emma Wolverson, Trust Clinical Psychologist, won the Alzheimer’s Society, Dementia Research Leader Award 2018 for ‘Outstanding contribution to early career dementia research’ along with £1,000 to put towards her career development over the next year.

Emma was nominated by Cathryn Hart, Assistant Director Research and Development, and received her award at the annual Alzheimer’s Society conference in May at the Kia Oval, London. Cathryn said “Emma is passionate about making a difference, a real advocate of the importance of research in the Trust, and thoroughly deserves this award. I am so pleased she was chosen as the winner.” Emma stated ‘it was such a great honour to win this prestigious award’.

Emma is also a Clinical Lecturer at the University of Hull and UK Chief Investigator for the European Horizon 2020-funded research trial of a digital platform for people living with dementia and those who support them, aiming for people to live well in the community for as long as possible. She was also recently one of BBC Radio Humberside’s panel of experts during Dementia Awareness Week.

 

National Clinical Director for Dementia to deliver keynote speech at Trust’s second research conference

The National Clinical Director for Dementia is to deliver a keynote speech at Humber Teaching NHS Foundation Trust’s second research conference.

Professor Alistair Burns, who is also National Clinical Director for Mental Health in Older People, will address delegates on 16 May - during Dementia Awareness Week - at the Mercure Hull Grange Park Hotel, in Grange Park Lane, Willerby.

Trust Chief Executive Michele Moran said: “For Alistair to agree to address our conference is a tremendous privilege for the Trust and a huge boost to our efforts to develop our reputation as a regional powerhouse of health research and development.

“We hope Alistair’s presence, combined with that of a host of other outstanding experts in related fields, will make the event an even bigger success than last year’s conference, which was not only a ‘sell-out’ but rated ‘excellent’ or ‘good’ by every delegate.”

Another headline speaker at the Developing a City of Research II event will be Simon Gilbody, Professor of Psychological Medicine and Health Services Research, and Director of the Mental Health and Addiction Research Group, both at the University of York.

Joanne Reeve, Professor of Primary Care Research at Hull York Medical School, and Andrea Nelson, Professor of Clinical Nursing and Deputy Dean of the Faculty of Medicine and Health at the University of Leeds, will also address delegates.

Other speakers will include Dr Judith Cohen, Director of the Hull Health Trials Unit, and Catriona Jones, Senior Research Fellow in Maternal and Reproductive Health, both from the University of Hull.

Wendy Mitchell, Humber’s Patient Research Ambassador, who is about to publish a book, Somebody I used to know, about her experience of living with dementia, will also speak.

Cathryn Hart, the Trust’s Assistant Director of Research and Development, said: “We aim to showcase even more local, national and international research our Trust is involved in, the potential for future collaborations and new areas of research, to demonstrate the benefits of research for our community, and to encourage more healthcare professionals to offer opportunities for people to become involved in research studies.

“We have chosen to hold the conference on 16 May to celebrate International Clinical Trials Day and to coincide with the National Institute for Health Research’s ‘I Am Research’ campaign.”

The event, which will run from 9am until 4pm, is aimed at Trust staff, commissioners, GPs, social services staff, academics, voluntary organisations and the media. Refreshments and a lunch will be provided.

Tickets, which are limited, are available from https://developing-a-city-of-research-ii-conference-ticket.eventbrite.co.uk

The full conference programme will be available nearer the day of the event.

Trust Patient Research Ambassador wins award at the Humber NHS Foundation Trust Awards Ceremony 2017

Wendy Mitchell, Patient Research Ambassador for the Trust has added one more to the growing number of Awards she has received – picking up the Volunteer award at the Humber NHS Foundation Trust 2017 Awards. The award was received on her behalf by Cathryn Hart (Assistant Director Research and Development) and Alison Greenley (Senior Research and Development Administration Assistant).This well-deserved award is in recognition of Wendy’s tireless efforts in promoting the benefits of research across our community – well done and many thanks Wendy. Only a few days earlier she had also received the Alzheimer’s Society Dementia Friendly award for Inspirational Individual at a ceremony in London.

Please click here to see the article about Wendy’s awards on the National Institute for Health Research (NIHR) website.

Dementia research: Colin and Irene's story

Colin, who along with his wife, has taken part in a number of research studies through the Trust, has spoken about living with dementia and taking part in research on the disease, in a video released to mark World Alzheimer's Day. He concludes by saying: "The more people involved in research into dementia the better." To learn more about research into dementia please visit www.joindementiaresearch.nihr.ac.uk or contact the Trust research team on 01482 301844, HNF-TR.ResearchTeam@nhs.net.’

You can watch the video here

Research Strategy 2017-19

The new Research & Development Research Strategy is now available.

The main aim of research is to make a positive difference to the quality of healthcare the NHS provides now and in the future. Objectives identified in this research strategy seek to build upon our existing strengths, to continue what we are doing well but also to be ambitious and innovative in our approach, to proactively seek and encourage new research partnerships and opportunities and to ensure we involve more of our community in good quality research. This builds on the significant work carried out as part of our previous two year research strategy, against which progress was made on all of the objectives set out within it.

You can download the strategy here.

European funded research study launched in Hull

Friday 27 January saw the official launch event at the Village Hotel in Hull of the ‘CareGiversPro-MMD’ study, part of a programme of research being led in the UK by the University of Hull. This European Horizon 2020 funded research is taking place in five sites across Europe; England, Spain, Italy, Germany and Greece, with Humber NHS Foundation Trust currently the only NHS site to be selected in the UK.

Dr Emma Wolverson (UK Chief Investigator and Trust Clinical Psychologist) and Dr Kevin Paulson from the University of Hull opened the event and gave an overview of the development of the web tool, the intervention being tested in this study, to support people with memory problems and their families.

Wendy Mitchell, who lives locally with dementia and is our Trust Patient Research Ambassador, gave a really interesting insight into how she uses technology in her daily life and of how research can have positive benefits for those who take part.

Presentations followed throughout the day from many guest speakers around the theme of health technology and the audience had the opportunity to discuss issues around the use of technology and things the research team may wish to consider when further developing this web-based intervention.

A very exciting project for this region!

Impact of Dementia Activism Project

This is a film made as part of the Impact of Dementia Activism project, a collaboration between the University of Edinburgh and Innovations in Dementia CIC. People with dementia talk about their experiences of dementia activism, including Wendy Mitchell, our Trust’s Patient Research Ambassador. You can see more about it here.

June 2018: New NICE guidelines stipulate that people with dementia should be provided with information on research studies they can take part in

www.nihr.ac.uk/news/new-nice-guidelines-recommend-telling-people-about-dementia-research-opportunities/8729

All people with dementia should be provided with information on research studies they could participate in, according to new guidelines on best practice released by NICE. Newly released guidelines for health and social care professionals include a recommendation to tell people living with dementia and their carers about research studies they could participate in. Currently it is estimated that 850,000 people in the UK are living with dementia, and the only way to find new and better ways to treat and care for those affected by the condition is to do more research. But researchers rely on people finding out about suitable studies and volunteering to take part.

The new recommendation from the National Institute for Health and Care Excellence (NICE), makes clear that health and care professionals should help people living with dementia and their carers find out about opportunities to take part in research, and empower them to make their own decisions about getting involved. One straightforward way to do this is to provide information about Join Dementia Research (www.joindementiaresearch.nihr.ac.uk/).

Hilary Doxford who was diagnosed with young onset dementia welcomes the new guidance: “When I was diagnosed, my second question to the clinician I saw was ‘What research is there that I can get involved in?’, and he just looked at me and shrugged his shoulders and said, ‘I don't know’. This guidance is great news for people with dementia.”

Please contact the Trust’s Research team for details of studies available locally and for help registering with the Join Dementia Research service on 01482 301726 or hnf-tr.ResearchTeam@nhs.net.

 

 

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