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Public and patient involvement

Research and Development - Public and Patient Involvement

There are 2 main ways in which you can help with research, firstly by taking part in one of our studies yourself (we call this participation) and secondly by helping promote and develop  research (we call this involvement).

 

Participation in Research

Research studies (sometimes also called clinical trials) rely on volunteers. Some involve healthy members of the public, while others involve patients taking part in a study during their care and treatment.

If you wish to take part in a research study or find out more information then please contact us. You may be invited to take part in a study if you are a patient at Humber Teaching NHS Foundation Trust, it is entirely up to you whether or not you wish to participate . If you decide not to participate it will not affect your usual treatment/care in any way.

Giving the Gift of Research: Listen to research staff, patients and members of the public on how they have contributed to and been involved in research in this short video:

The Clinical Research Network Yorkshire and Humber are asking people to give the gift of research to celebrate 70 years of the NHS and have shared a short animation to encourage people to get involved. You can watch the animation here.

Why Participate in research?

If you take part in a research study you:

  • will be helping others, and possibly yourself, by helping to identify more effective treatments;
  • may have more contact with healthcare staff than you normally would;
  • will have opportunities to learn more about your condition, which may help you to manage it better;
  • may feel as though you are taking a more active role in your healthcare.

Many of our patients who have taken part in research have found it a positive and rewarding process.

What people participating in research say:

 “Thank you for giving me a voice”

 “Keeps your mind on the ball as you’re waiting for the phone calls and it pushes you on. I built a rapport and I’d look forward to the calls to report how I had done, which made it better in a nice way. The researchers and pharmacy team were non-judgemental and they were interested in me and listened which made it beneficial.”

 “The light is back on with hope and stresslessness, with the project bringing new friendships, in helping to live instead of dreading the future. With friends at the touch of a button and help of all kinds, life is worth living after all.”

 “The service is absolutely fantastic, we never, ever thought he would be able to walk with a dog in the street, and in the park. He has walked to school for the first time in two years.”

What will my participation entail?

Your level of participation and the time required depends on what is being investigated. The research team should be able to provide you with details.

Before you consider taking part in a trial, please see our frequently asked questions page. This has useful information and questions you may wish to ask the research team.

 

Involvement in Research

You can help us with promotion and development of our research by becoming a Patient Research Ambassador, please see the section below for further details of this.

Patient Research Ambassador

If you are a patient or carer who would be interested in promoting health research from a patient or carer’s point of view by sharing information, knowledge and experiences of research, please see this link for further information www.nihr.ac.uk/patients-and-public/how-to-join-in/patient-research-ambassadors or contact The Research Team at HNF-TR.ResearchTeam@nhs.net  or on 01482 301726.

 

Please see this link for information on other ways you can be involved in Research with the National Institute for Health Research (NIHR)

https://www.nihr.ac.uk/patients-carers-and-the-public/i-want-to-help-with-research/

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