Patient and Public Involvement
Interested in helping with Research?
There are two main ways in which you can help with research. The first is by taking part in one of our studies yourself (we call this ‘participation’), the second is by helping to promote and develop research (we call this ‘involvement’).
Participation in Research
Research studies (sometimes called clinical trials) rely on volunteers. Some involve healthy members of the public, while others involve patients taking part in a study during their care and treatment.
If you wish to take part in a research study or find out more information then please contact us.
If you’re a patient at the Trust, you may be invited to take part in a study. This is entirely optional and it is up to you whether or not you wish to participate. If you decide not to participate, it will not affect your treatment or care in any way.
Please see this ‘Be Part of Research’ animation which may help you understand a bit more about the many different ways there are to take part in research.
Giving the Gift of Research: Listen to research staff, patients and members of the public on how they have contributed to and been involved in research in this short video:
Why participate in research?
If you take part in a research study you:
- will be helping others, and possibly yourself, by helping to identify more effective treatments;
- may have more contact with healthcare staff than you normally would;
- will have opportunities to learn more about your condition, which may help you to manage it better;
- may feel as though you are taking a more active role in your healthcare.
Many of our patients who have taken part in research have found it a positive and rewarding process. Here’s what some of them have said:
“Thank you for giving me a voice.”
“Keeps your mind on the ball as you’re waiting for the phone calls and it pushes you on. I built a rapport and I’d look forward to the calls to report how I had done, which made it better in a nice way. The researchers and pharmacy team were non-judgemental and they were interested in me and listened which made it beneficial.”
“The light is back on with hope and stresslessness, with the project bringing new friendships, in helping to live instead of dreading the future. With friends at the touch of a button and help of all kinds, life is worth living after all.”
“The service is absolutely fantastic, we never, ever thought he would be able to walk with a dog in the street, and in the park. He has walked to school for the first time in two years.”
What does participation involve?
Your level of participation and the time required depends on what is being investigated. The research team should be able to provide you with details.
Before you consider taking part in a trial, please see our frequently asked questions. This has useful information and questions you may wish to ask the research team.
Involvement in Research
If you do not wish to participate in research, but you do want to help us with promotion and development, you can do so by becoming a Research Champion.
Who can be a Research Champion?
If you are a patient or carer who would be interested in promoting health research from a patient or carer’s point of view by sharing information, knowledge and experiences of research, please click here for further information or contact The Research Team via email HNF-TR.ResearchTeam@nhs.net or phone 01482 301726.
Alternatively, please click here for information on other ways you can be involved in Research with the National Institute for Health Research (NIHR).
Research & Development Office
Humber Teaching NHS Foundation Trust
Tel: 01482 301726
You can also contact us using our online R&D Contact Us form.